This is an attempt to update and inform family, friends and whomever else may read this blog, about my journey with lung disease and my life after a double lung transplant.
Monday, September 8, 2008
BACKTRACKING A BIT
This is the special roto bed I was in for a few weeks back in Dec. 2006 and part of Jan. 2007 . It moves side to side so the fluid in the lungs won't settle.
I am going to backtrack a little bit, and post a brief history of my illness for those of you who may not know. This was originally posted on the NTAF web site. It is still there, but putting it here may be more convenient. Monica wrote this for that site so I will take it directly from her words."As most of you know, since November 29, 2006 Marty has been in a battle with lung disease. He had spent many months, a good part of 2007, at Scottsdale Healthcare Osborn. During his stay, he was tested for many, many things, all to come back with "negative" results. He was in and out of the hospital a few times throughout 2007, but in February 2008 he began requiring more supplemental oxygen. He had a lung biopsy in March 2008. It showed a diagnosis of pulmonary fibrosis. So, what we thought began as a normal cool in 2006, ended up being life threatening
His pulmonologist, Dr. Alpa Shah, then referred him to The Heart and Lung Institute at St. Josephs Hospital in Phoenix. After the consultation with the transplant team, we decided to go ahead with the lung transplant. We began the evaluation process to see if Marty would even meet the criteria on July 16 and completed the tests on the 18th. The transplant team met on the 24th of July and decided that Marty would be a good candidate for a lung transplant, basically health enough to make it through, and sick enough to need one. He was officially "listed" on that same Thursday afternoon. We went about our daily business as best we could, always carrying our phones with us, waiting for the call. Well, the transplant nurse coordinator, Kate, called Marty on Saturday the 26th with the question; "Marty, how would you feel about getting some new lungs today?" That call sure came a lot quicker than we thought. His response was a definite YES, and we headed off to the hospital."
That is a very abbreviated version. I will try to upload some pictures of my stay at Scottsdale Healthcare. For as long as I was there, there aren't really too many photos, but there are a few.
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The Long and Winding Road. Keep Breathing and Believing!
A MIRACLE IN PROGRESS!
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